Long-COVID Australia Collaboration

Four Rs and a P needed for #LongCovid:

Reporting (#CountLongCovid)
Recognition (diagnosis & treatment)
Rehabilitation
Research

And guess what the P is?
PREVENTION

— Prof Nisreen Alwan 🌻 (@Dr2NisreenAlwan) June 20, 2022

Great to see Tasmania stepping up to the #longCovid challenge @LongCOVIDAus https://t.co/5nw8lufg4T

— Andrew Baillie (@AndrewJBaillie) June 8, 2022

Australia, we need to talk — A brief critique of the @NSWHealth clinical practice guide, which dropped this week for #PASC #LongCovid: 🧵 1/n

— Eliza Charley | Actress on Pause (@ElizaCharley) June 2, 2022

Omitting long Covid from pandemic messaging is harmful for public health https://t.co/acXxYoJtkf via @statnews

— Martin Hensher (@HensherMartin) May 22, 2022

OT for #longcovid @OT_Ireland @LongCOVIDAus thanks @anniemccluskey2 4 RT https://t.co/7mVS4u5i6c

— Andrew Baillie (@AndrewJBaillie) April 21, 2022

As we enter an era of big data, how is the missing data going to affect us…

‘Health economist Professor Martin Hensher warns that #LongCovid poses a serious public health threat & critical data is missing.’ https://t.co/eRe7mRVLyv

— Long Covid SOS (@LongCovidSOS) April 3, 2022

This is a prime example of Primary Health Care at its best. We need an integrated multidisciplinary team to ensure the appropriate management plan is enacted and financial barriers removed. @apaphysio @RACGPPresident @amapresident https://t.co/3RiikTBpB1

— Scott Willis (@ScottSwillis) March 11, 2022

Melbourne, Australia: Inside a #LongCOVID clinic, a chronic condition is revealed
https://t.co/3HgepPzTs7

— Long Covid Support 🌍 (@long_covid) February 27, 2022

Illustrated traces of #LongCovid in today's @nytimes
See the online version 👇https://t.co/iaToDLfj7t
Extraordinary graphic summary, by @joshkellerjosh @NYTScience w/ @13pt @PamBelluck @AmandaMoMorris pic.twitter.com/bvDjrob0FH

— Eric Topol (@EricTopol) February 22, 2022

Great to see rising awareness of the impact of #LongCovid action is needed now to fund and inform health services @LongCOVIDAus @GregHuntMP @BradHazzard https://t.co/oi5yJ6Q0yM

— Andrew Baillie (@AndrewJBaillie) February 20, 2022

With COVID-19 cases up preparations for #LongCovid are essential – thanks @HensherMartin & Sunrise @LongCOVIDAus https://t.co/HYt8Umh3jg

— Andrew Baillie (@AndrewJBaillie) February 19, 2022

🧵I wrote about #longCOVID and chronic illness for @sciam's pandemic anniversary package: "It is time for medical researchers to investigate these long-contested illnesses with the full force of science’s power…" https://t.co/hreAG7PfNA

— Meghan O'Rourke (@meghanor) February 17, 2022

Why is there so much complacency about #LongCovid?https://t.co/GziHCWlsZE @nature by @lfspinney pic.twitter.com/9SdDBkxoBk

— Eric Topol (@EricTopol) February 16, 2022

If you thought #LongCovid wasn't a big issue, think againhttps://t.co/YKCVKaznVbhttps://t.co/DGP8BOW1uW pic.twitter.com/SljzLSAP0v

— Eric Topol (@EricTopol) February 8, 2022

Sydney Morning Herald: "Sick for the long haul – One third of COVID-19 patients have symptoms for eight months".
Thanks for sharing this latest report on your ADAPT study Dr. @DavidDarley_ #LongCovid #CountLongCovid https://t.co/vd6jIhBnV3

— Long Covid Support 🌍 (@long_covid) March 31, 2021

This study is a big deal: PCR false negatives are significantly more common in women & people < age 40.

Not having PCR confirmation = less likely to get treatment, time off work, & adequate rest. #LongCovidhttps://t.co/hPatoyK5wu

1/ pic.twitter.com/53j9kgo7mt

— Hannah Davis (@ahandvanish) May 20, 2022

Such an important part of the #shadowpandemic and needs to be kept in mind for #LongCovid -with infections in family units and necessary infection control measures, some died away from their loved ones @LongCOVIDAus https://t.co/3cUcubRwG1

— Andrew Baillie (@AndrewJBaillie) April 27, 2022

An estimated 1.7 million people living in private households in the UK (2.7% of the population) were experiencing self-reported long COVID as of 5 March 2022 https://t.co/glXxQn7nMj pic.twitter.com/FwHsWtvN5f

— Office for National Statistics (ONS) (@ONS) April 7, 2022

With millions infected with SARS-CoV-2 worldwide, the need for multidisciplinary management of the chronic complications,#LongCovid will be a major issue for healthcare providers https://t.co/REl0EXDl1c @LongCOVIDAus

— Andrew Baillie (@AndrewJBaillie) March 17, 2022

#LongCovid needs more funding and attention to inequities! https://t.co/tuvRvSEPqZ thanks @evelynedeleeuw @ayashadhana @DanielleHitch @LongCOVIDAus https://t.co/ejBDcciCea

— Andrew Baillie (@AndrewJBaillie) March 13, 2022

Our baseline #LongCovid characteristics study is now in ⁦@PLOSONE⁩. These are findings from a survey of >2500 people we did at the end of 2020 & shared as preprint. We followed up participants a year later & will hopefully be sharing findings soon. https://t.co/FaviWYE9zu

— Prof Nisreen Alwan 🌻 (@Dr2NisreenAlwan) March 9, 2022

#LongCovid specialist clinics and support for first line treatment in primary care needed now @LongCOVIDAus https://t.co/p8FeYAMn2i

— Andrew Baillie (@AndrewJBaillie) February 27, 2022

More evidence of the cardiovascular impact of #LongCovid @LongCOVIDAus https://t.co/0ovLbtnbYe https://t.co/2PblJGQWGW

— Andrew Baillie (@AndrewJBaillie) February 18, 2022

We need a national recovery task force with #LongCovid in the picture for kids and for adults @LongCOVIDAus https://t.co/IpAYkqJEYs

— Andrew Baillie (@AndrewJBaillie) February 18, 2022

Fatigue and cognitive impairment are common after COVID-19 – pooling data from 68 studies showed fatigue in 32% of people (95% sure between 27 & 37%) at 12 weeks and from 43 studies cognitive impairment (brain fog) in 22% (95% sure 17-28%) at 12 weeks #longCovid @LongCOVIDAus https://t.co/vDkXK60LWL

— Andrew Baillie (@AndrewJBaillie) February 9, 2022

The first comprehensive assessment of the cardiovascular complications of #LongCovid at 1 year, just published @NatureMedicine https://t.co/bCXl6MVPGy
by @zalaly and colleagues @WUSTLmed pic.twitter.com/FD4YRiA5es

— Eric Topol (@EricTopol) February 7, 2022

Long COVID: supporting people through the quagmire https://t.co/rpgatycQTh #LongCovid pic.twitter.com/VpDSSLIWAX

— The British Journal of General Practice (@BJGPjournal) January 18, 2022