Long-COVID Australia Collaboration

Four Rs and a P needed for #LongCovid:

Reporting (#CountLongCovid)
Recognition (diagnosis & treatment)
Rehabilitation
Research

And guess what the P is?
PREVENTION

— Dr Nisreen Alwan 🌻 (@Dr2NisreenAlwan) June 20, 2022

This ⤵️⤵️⤵️🤦🏼‍♀️😩. Yes we need more support for #LongCovid. But we need support that is based on the best science we have available to us right now, and support that is dignified and respects the patient voice. Please remember you are dealing with broken people.. https://t.co/kADGpkYyTp pic.twitter.com/Wz159eKppO

— Helen Kulas (@HelenKKulas) June 10, 2022

Great to see Tasmania stepping up to the #longCovid challenge @LongCOVIDAus https://t.co/5nw8lufg4T

— Andrew Baillie (@AndrewJBaillie) June 8, 2022

Australia, we need to talk — A brief critique of the @NSWHealth clinical practice guide, which dropped this week for #PASC #LongCovid: 🧵 1/n

— Eliza Charley (@ElizaCharley) June 2, 2022

Omitting long Covid from pandemic messaging is harmful for public health https://t.co/acXxYoJtkf via @statnews

— Martin Hensher (@HensherMartin) May 22, 2022

OT for #longcovid @OT_Ireland @LongCOVIDAus thanks @anniemccluskey2 4 RT https://t.co/7mVS4u5i6c

— Andrew Baillie (@AndrewJBaillie) April 21, 2022

As we enter an era of big data, how is the missing data going to affect us…

‘Health economist Professor Martin Hensher warns that #LongCovid poses a serious public health threat & critical data is missing.’ https://t.co/eRe7mRVLyv

— LongCovidSOS (@LongCovidSOS) April 3, 2022

This is a prime example of Primary Health Care at its best. We need an integrated multidisciplinary team to ensure the appropriate management plan is enacted and financial barriers removed. @apaphysio @RACGPPresident @amapresident https://t.co/3RiikTBpB1

— Scott Willis (@ScottSwillis) March 11, 2022

Melbourne, Australia: Inside a #LongCOVID clinic, a chronic condition is revealed
https://t.co/3HgepPzTs7

— Long Covid Support 🌍 (@long_covid) February 27, 2022

Illustrated traces of #LongCovid in today's @nytimes
See the online version 👇https://t.co/iaToDLfj7t
Extraordinary graphic summary, by @joshkellerjosh @NYTScience w/ @13pt @PamBelluck @AmandaMoMorris pic.twitter.com/bvDjrob0FH

— Eric Topol (@EricTopol) February 22, 2022

Great to see rising awareness of the impact of #LongCovid action is needed now to fund and inform health services @LongCOVIDAus @GregHuntMP @BradHazzard https://t.co/oi5yJ6Q0yM

— Andrew Baillie (@AndrewJBaillie) February 20, 2022

With COVID-19 cases up preparations for #LongCovid are essential – thanks @HensherMartin & Sunrise @LongCOVIDAus https://t.co/HYt8Umh3jg

— Andrew Baillie (@AndrewJBaillie) February 19, 2022

🧵I wrote about #longCOVID and chronic illness for @sciam's pandemic anniversary package: "It is time for medical researchers to investigate these long-contested illnesses with the full force of science’s power…" https://t.co/hreAG7PfNA

— Meghan O'Rourke (@meghanor) February 17, 2022

Why is there so much complacency about #LongCovid?https://t.co/GziHCWlsZE @nature by @lfspinney pic.twitter.com/9SdDBkxoBk

— Eric Topol (@EricTopol) February 16, 2022

If you thought #LongCovid wasn't a big issue, think againhttps://t.co/YKCVKaznVbhttps://t.co/DGP8BOW1uW pic.twitter.com/SljzLSAP0v

— Eric Topol (@EricTopol) February 8, 2022

Sydney Morning Herald: "Sick for the long haul – One third of COVID-19 patients have symptoms for eight months".
Thanks for sharing this latest report on your ADAPT study Dr. @DavidDarley_ #LongCovid #CountLongCovid https://t.co/vd6jIhBnV3

— Long Covid Support 🌍 (@long_covid) March 31, 2021

This study is a big deal: PCR false negatives are significantly more common in women & people < age 40.

Not having PCR confirmation = less likely to get treatment, time off work, & adequate rest. #LongCovidhttps://t.co/hPatoyK5wu

1/ pic.twitter.com/53j9kgo7mt

— Hannah Davis (@ahandvanish) May 20, 2022

Such an important part of the #shadowpandemic and needs to be kept in mind for #LongCovid -with infections in family units and necessary infection control measures, some died away from their loved ones @LongCOVIDAus https://t.co/3cUcubRwG1

— Andrew Baillie (@AndrewJBaillie) April 27, 2022

An estimated 1.7 million people living in private households in the UK (2.7% of the population) were experiencing self-reported long COVID as of 5 March 2022 https://t.co/glXxQn7nMj pic.twitter.com/FwHsWtvN5f

— Office for National Statistics (ONS) (@ONS) April 7, 2022

With millions infected with SARS-CoV-2 worldwide, the need for multidisciplinary management of the chronic complications,#LongCovid will be a major issue for healthcare providers https://t.co/REl0EXDl1c @LongCOVIDAus

— Andrew Baillie (@AndrewJBaillie) March 17, 2022

#LongCovid needs more funding and attention to inequities! https://t.co/tuvRvSEPqZ thanks @evelynedeleeuw @ayashadhana @DanielleHitch @LongCOVIDAus https://t.co/ejBDcciCea

— Andrew Baillie (@AndrewJBaillie) March 13, 2022

Our baseline #LongCovid characteristics study is now in ⁦@PLOSONE⁩. These are findings from a survey of >2500 people we did at the end of 2020 & shared as preprint. We followed up participants a year later & will hopefully be sharing findings soon. https://t.co/FaviWYE9zu

— Dr Nisreen Alwan 🌻 (@Dr2NisreenAlwan) March 9, 2022

#LongCovid specialist clinics and support for first line treatment in primary care needed now @LongCOVIDAus https://t.co/p8FeYAMn2i

— Andrew Baillie (@AndrewJBaillie) February 27, 2022

More evidence of the cardiovascular impact of #LongCovid @LongCOVIDAus https://t.co/0ovLbtnbYe https://t.co/2PblJGQWGW

— Andrew Baillie (@AndrewJBaillie) February 18, 2022

We need a national recovery task force with #LongCovid in the picture for kids and for adults @LongCOVIDAus https://t.co/IpAYkqJEYs

— Andrew Baillie (@AndrewJBaillie) February 18, 2022

Fatigue and cognitive impairment are common after COVID-19 – pooling data from 68 studies showed fatigue in 32% of people (95% sure between 27 & 37%) at 12 weeks and from 43 studies cognitive impairment (brain fog) in 22% (95% sure 17-28%) at 12 weeks #longCovid @LongCOVIDAus https://t.co/vDkXK60LWL

— Andrew Baillie (@AndrewJBaillie) February 9, 2022

The first comprehensive assessment of the cardiovascular complications of #LongCovid at 1 year, just published @NatureMedicine https://t.co/bCXl6MVPGy
by @zalaly and colleagues @WUSTLmed pic.twitter.com/FD4YRiA5es

— Eric Topol (@EricTopol) February 7, 2022

Long COVID: supporting people through the quagmire https://t.co/rpgatycQTh #LongCovid pic.twitter.com/VpDSSLIWAX

— The British Journal of General Practice (@BJGPjournal) January 18, 2022